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What Happens When a Loved One Is Diagnosed with Dementia?

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Receiving the news that a loved one has been diagnosed with dementia can be an emotional time with substantial changes. The changes that dementia or one of its related conditions brings affect the individual and their families. So, it’s important to gain an understanding of dementia, learn about its symptoms, and plan for the future—long-term care, financial planning, and getting routines—in place once a loved one is diagnosed with dementia. 

Understanding what dementia entails and how to navigate this journey can empower you and your loved ones to face the future with strength and hope. And it’s important to remember that there’s support available, whether in the form of long-term memory care, respite care, or several other senior living options that can cater to varying needs.

Understanding Dementia

Dementia isn’t a specific disease but rather a general term for a decline in cognitive function severe enough to interfere with daily life. Alzheimer’s disease is the most common form—accounting for 60 to 80% of dementia cases.

Symptoms can vary widely but generally involve:

  • Memory loss
  • Difficulties with thinking, problem-solving, communication
  • Trouble performing normal activities of daily living
  • Trouble doing things they used to do

It’s crucial to recognize that dementia affects each person uniquely, and the progression of the condition can differ significantly from one individual to another.

The Emotional Impact on Families

Learning about a loved one’s dementia diagnosis can trigger a range of emotions—from shock and disbelief to sadness and even anger. It’s natural to grieve for the changes in your loved one and the future you had envisioned.

But it’s also an opportunity to come together as a family, offering support and love to each other during this potentially challenging time. Open, compassionate conversations about your emotions and concerns can foster understanding and solidarity.

Recognizing the Stages of Dementia

Dementia typically progresses through stages, each with its own set of challenges:

  • Early stage: Mild forgetfulness, misplacing items, or struggling with complex tasks. This stage often goes unnoticed or is mistaken for normal aging and is a crucial time for a senior to maintain as much independence as possible.
  • Middle stage: Increased memory loss and confusion, difficulty with personal care, and noticeable changes in behavior and personality. This stage is often the longest stage of dementia. It can last for 2 to 4 years.
  • Late stage: Severe cognitive decline, loss of ability to communicate, and complete dependence on others for daily activities are common symptoms during late-stage dementia.

Understanding these stages can help you anticipate and prepare for changes, making it easier to provide appropriate care.

The Importance of Early Diagnosis

Even though there isn’t a cure for dementia, an early diagnosis is crucial in managing dementia effectively. It allows for early intervention—such as various medication options—which can slow the progression of symptoms and improve quality of life.

Recognizing the signs—such as memory loss, difficulty finding words, and changes in mood or behavior—is the first step. But many people often attribute some of these to normal aging or other factors. So, encouraging a loved one to seek medical advice if these symptoms start showing up and understanding the benefits of early diagnosis can make a significant difference.

Coping with the Dementia Diagnosis

Coping with a dementia diagnosis requires patience, empathy, and practical strategies. Some tips to consider include:

  • A change in communication: Simplify your language, speak slowly and clearly, and use non-verbal cues to aid understanding as your loved one’s communication abilities change.
  • Find support: Join support groups, seek counseling, and connect with community resources to share experiences and gain insights. This can help keep you grounded, especially if you’re caring for your loved one alone.
  • Educate yourself: Learn about dementia, its progression, and effective caregiving techniques to better support your loved one through the condition’s progression.
Professional caregiver checks in on 2 seniors during their mealtime.

Planning for the Future with Dementia

Creating a safe, structured environment can benefit a loved one with dementia. There are many ways to do this, but a few of them include:

  • Safety precautions: Remove tripping hazards, install locks, and ensure medications are secure.
  • Routine: Establish a consistent daily routine to reduce confusion and anxiety.
  • Engagement: Encourage your loved one to participate in stimulating activities that match their abilities and interests.

Financial & Legal Considerations

There are often financial supports available, but memory care or other senior care options still cost money. So, financial and legal planning is a critical aspect of plans with a dementia diagnosis:

  • Care planning: Explore options such as in-home care, assisted living, memory care, or respite care.
  • Legal aspects: Set up powers of attorney, advance directives, and other legal documents to ensure your loved one’s wishes are honored.
  • Community resources: Investigate local services and programs that offer financial assistance and support.

Don’t Plan for the Future Alone

Receiving a dementia diagnosis for a loved one can be a life-altering event. But remember, you’re not alone.

Call our team at Somerby Franklin today if you recently found out a loved one has dementia. We’re happy to answer your questions about some of your next steps, and we’d love to show you the community so you can see what we can offer your loved one as their needs increase.

Written by
Christina Dolan

More Articles By
Christina Dolan
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